Showing posts with label struggling. Show all posts
Showing posts with label struggling. Show all posts

Monday, 18 March 2019

Struggling

Moving to The Nook in August 2017 was an exciting but daunting prospect. I had moved to Somerset in 1997 in a determined effort to get away from my parents - it backfired; they bought a house down there where I lived for 19.5 years. Moving back to Reading was exciting because it offered me so many more opportunities (especially coinciding with my youngest going off to uni and my own graduation) but it also represented a huge step backwards.
I haven't moved back to square one exactly...I am in the house next door. So much closer to my dad than I would ever choose to be. But approaching 40 and still working part time as a cleaner, and with my parents in their 70s, I acknowledged it was the only logical thing to do.
Perhaps in some regards I have caused my own misery - I planned the move for 2.5 years, I bought new and new-to-me things to put in it, I imagined joining the local Egyptology society, finding a half decent job. Even after I realised my eldest would be moving in after uni I thought we're two adults sharing, I can have my life back.
And that is saying a lot. I went from an unhappy childhood to lone teenage parenthood where I stayed until my kids were full grown ready-to-vote adults. It's not a matter of getting my life BACK so much as finally being able to BEGIN.

How it actually worked out wasn't too bad, to begin with. The elder beastie and I found jobs straight off. Neither job was especially fabulous but Erin got a decent wage while I was gaining vitally important experience - I'd already been told I couldn't get my dream job because I had no experience of cash-handling or customer service. Those boxes were finally getting ticked. Six weeks later I graduated; a month after that it was Erin's turn. Autumn 2017 was all mortarboards and gowns ;)
We had a first Christmas at The Nook - the first time I had had a 'full' family Christmas since I was a nipper. There were only six of us but that was double the usual and it felt so important.
In March I had my 40th birthday. I don't mind being 40 but 41 still feels a step too far, which is unfortunate as it is now approaching particularly rapidly. By this point I was particularly stressed with work - my 4 hours a week sales assistant contract having been totally disregarded I was now often working 40+ hours and running the whole shop several days a week. I don't know how much clearer I could have been that I did not feel trained or prepared for such a level of responsibility...I was actively looking for another job.

Then it all changed.

I've already blogged about my mum's stroke but so newbies don't have to trawl through all my opinionated potato wafflings the basics are:
My mum suffered a severe stroke on 16th April 2018 affecting both hemispheres. She was not treated as such because they failed to diagnose her for 24 hours (apparently the NHS can only recognise strokes if they only affect one hemisphere, despite the fact it was bloody obvious to us laypersons and we said so repeatedly) they just offered support and physio through the worst of the aftermath. She was in hospital for 9.5 weeks.

There was never any question that she would come and live with me after. There just weren't any other options. Her flat was inaccessible to her.
Her partner's health was too poor to be her carer - he's been hospitalised several times already this year - and his house would have required adaptations. My stepdad rings every day to check in but I get so frustrated at hearing about him spending time with his mates or going out to play boules (or whatever it is). Does he think I *want* to hear that?! He has his freedom because I have the responsibility; I likely won't be seeing my friends again. TBH if it was down to him my mum would've had to go into a home cos he just couldn't have done the things I do. 
Even if she and my dad had still been together whilst his health is better he's still mid 70s, and again the house would need adapting. Even he talks about the difference all this makes to his life...he literally visits my mum an hour or two a day. From right next door. Yeah, sure, this has made a HUGE difference to your daily routine! 
I have no siblings. 
My house however needed no alterations although arrangements had to be made for Erin as my mum needed her bedroom. Also, I was her named next of kin and there was an Enduring Power of Attorney set up so I could take care of everything.
I gave notice at work although my coworkers struggled to understand - one coworker had a mother who was still independent after multiple strokes and, as is inevitable, people do see things through the lens of their own experiences. Even my aunt (my mother's sister) thought she would bounce back like her husband had. He had three strokes that March and by the time my mum had hers he was pottering at home again. That would have been fair enough but their father had suffered a severe stroke...I thought she would understand what we were facing.
One of the more difficult moments was when my dad acknowledged that my mum's stroke was much worse than her dad's. He lived 16 years with what seemed a very poor quality of life. They didn't know he'd suffered further strokes until after he died. Meanwhile, we're fairly sure my mum has already had subsequent strokes...

But I am not cut out to be a carer. Being stuck at home with my own kids drove me demented. I HATED IT. And I had every expectation of them growing up and leaving...I know damn well that there's only one way this can go...and when it's over I have my dad and my stepdad (who came into our lives when I was 29), both of whom have signed Power of Attorney documents putting me in charge. I feel crushed under the weight of responsibility I just don't want.
The stress is chronic. I want to run away, to be free, to live MY life at long last. I feel like I can't BREATHE.

Basically, I'm in mourning. For the life I never had. For the life I never will have. 
My kids' dad was nothing to write home about but there's a blog here somewhere if you really want to know. He was TOTALLY out of our lives when I was 20, before our youngest was born. Zero contact, zero child support. I've been on my own ever since. Now I have to accept being alone forever - even if I met someone (which I can't as I'm stuck at home) my mum wouldn't allow it.
The degree I worked my arse off for won't lead to anything. My CV is decades behind my chronological age. I'll never buy a house, or learn to drive or even just pay for a holiday. Anything I ever have will be inherited, I can't achieve anything for myself - not even a pension now.
No relationships, no friends, no career; not even a bog-standard job. None of those life landmark achievement things.

The best my life has ever been was my mid-life crisis (age 33-38 in my case). It was the point my kids were old enough to do their own thing while I could enjoy the little disposable income I had going to rock gigs, fucking up my hair and getting tattoos.
Dealing with the fact that was it, all the life of my own I'm gonna get, is something I just can't wrap my head around.
What's more is that in that time I lost a load of weight and actually whipped my fat butt into a halfway decent shape. Now I can't get out I'm getting fat again. And I'm drinking a helluva lot.

I don't want my mum to go but I know it's gonna happen, sooner rather than later most likely. I know that what she's going through is worse than what I'm going through but...

  • when she's gone her sufferings will be over; I will still have responsibility for my dad (EPoA to be activated) and stepdad (LPoA pending). There isn't an end when the end comes.
  • My mum's mum died of stroke, albeit at 95; as I mentioned above her dad died 16 years after a severe stroke. From the day it happened I've been feeling a nasty fear that this is also my personal future...and not one that can be avoided by any means. So who gives a fuck about the diet and alcohol?
I feel like I'm being selfish but I *am* doing the best I can by my mum. I just want there to be something for ME as well, y'know?!

Thursday, 21 June 2018

9 weeks plus three? four?! I lose count...

Monday 16th April to Thursday 21st June
It's just the early hours of the 21st BUT...my mum is coming home today!!! I am roughly equal parts excited, relieved and terrified.
It's a new chapter of all our lives. It's tremendous that we finally made it to this point. But I am totally aware of how difficult this is likely to be. I just got my life back after raising my kids, I was enjoying my new-found freedoms...and now it's gone. Not gonna lie, that makes me sad. I was going to Bristol to see Ashestoangels on Sunday night and now that's gone. This last year I went to TVAES lectures...now that's out too.
I know it's pretty selfish but I never had much of a life. I went from being a kid to a teen mum and then after a brief midlife crisis I'm gonna be a full-time carer. No career, no relationships. It's difficult.

Thursday, 14 June 2018

Day Sixty...I think?

It has been eight and a half weeks since my mum was taken into hospital following a severe stroke affecting both hemispheres of her brain.

My mum is doing okay and a couple of days ago we had a home assessment to see what my mum's needs will be...that went really well as the house was considered very suitable and they think mum can come home ahead of the ballpark "early July" we were previously told. In fact, it might be at the end of next week!
On the downside we're not getting a lot of support. The home physiotherapy service has already notified us there's likely to be a very long wait and, despite my mum only being able to walk very short distances with a frame and me not driving, she hasn't even been deemed in need of a wheelchair! Bloody ridiculous IMHO.

My cancer scare may yet turn out to be nothing (please keep everything crossed for me!) as my smear test came back normal. No idea what on earth it could be but personally I'm hoping for it to be something menopause related. Yes, I'm 'only' 40 but it's been a very real possibility since surgery when I was 29. The colposcopy is booked for the same day my mum's big meeting to arrange her discharge is scheduled. 

So that's the good(ish) news. On the more difficult side we have the fact I left my job almost a week ago. Unscheduled. I had given notice but a change of computer system and being expected to learn all these new procedures for the sake of a handful more shifts got me stressed out of my gourd until I felt I had no choice but to walk out.
It wasn't bad timing either as the next day my mum had a fall in the hospital and has been really shaken and upset ever since. She is TERRIFIED they'll find a reason she can't come home. It has been a great relief to know I can be there every day to support her.

Then there's the thing where my dad, who is my next door neighbour and my mum's ex partner (by about 14 years at this point), got mortally offended that he "wasn't invited*" to the home assessment mentioned before that he's now not talking to me and hasn't been back to visit my mum. Absolutely pathetic! Unfortunately, the home assessment was nothing to do with him, not to mention that my mum didn't want him there and neither did I...also, he didn't help me prepare for it and actually got in my way quite a lot.
Not that he has to help me as an adult or my mum as his ex the sudden change of heart has made things a good bit more difficult. I kind of hope it's just that the stress of the whole situation has got to him and he'll come around but he has a loooong track record of this sh*t so I won't hold my breath.
*Incidentally, he has never invited me over to his house (assuming we can exclude him asking me to check his emails and the like) and that's INCLUDING the 20 years we lived in Somerset. All the times I visited it was me asking if we could come up.

So yeah, that's where we're at. My mum has times when she wishes she hadn't survived but as someone I know went through that just last week - he mother passed just 2 days after a stroke - I am immensely grateful my mum is still with me and with as much of her abilities and personality intact as she has. We could have lost her in more ways than just by death.
Not gonna lie though, this is by far the most stressful experience of my life...I can only imagine how much worse it must be for my mum.

UPDATE
The colposcopy was fine - no idea what was causing the severe, heavy, prolonged, non-menstrual bleeding but it may have been stress related as it turned out one of my daughters was having the exact same thing!

Monday, 26 July 2010

I Hate Summertime

I'll be happy to get to mid August and not just because I'll be on holiday...I really hate this time of year and, being exceptionally slow on the uptake, I've finally figured out why:
Between mid June to mid August my life has a history of falling apart.

1994
I was 16 years old...NKOTB split up, I found out I was pregnant, parents kicked me out and I spent some time in hostels for the homeless, he walked away saying he didn't want to "influence my decision" and left me to the mercy (ha!) of my parents. As I don't have a 15 year old you can guess how that worked out... By mid August I had taken him back...because I am exceptionally stupid

1995
Same guy, same time of year, much the same story only this time I DO have a 14 year old to show for it...
I'll also mention that I'd had an early miscarriage in the January - I was stupid but in my defence my head was seriously screwed up by this point.

1996
It was in mid June that I took THE SAME GUY back AGAIN. I did say I was REALLY STUPID, right?!?!

1998
The same guy had been in prison for a year, he came home to me and left 5 weeks later and yup, pregnant again. That's four pregnancies before I was 21 and all with the same useless bloke. There aren't words for just how vastly, hugely, mind-bogglingly stupid I was.
It was in July that I last saw him. He let me down when I was rushed into hospital for emergency surgery - torsion of a volleyball-sized ovarian cyst at 15 weeks along is not fun and the [bleep] wouldn't even bring me a nightie! Luckily I made it and I have an 11 year old. Sometimes the way she acts suggests she wasn't worth the trouble mind you

2007
After a stretch of quiet summers I found a lump in my abdomen as I was leaving for a holiday in Croatia. History was repeating with another big ol' ovarian cyst. After being rescheduled I finally had surgery on July 26th - the day before my 1st baby's anniversary
All went well but back on the ward a nurse commented that both tumours had been successfully removed. What do you mean BOTH?! I had been under the impression there was one cyst on the same, previously damaged ovary. Somehow they'd forgotten to tell me there were two, one on each and in fact the bigger one (at 6 inches by 4) was on the other ovary so both were now badly damaged.
I totally freaked. Threw a big ol' hissy fit too when they said my oxygen sats were too low. "Of course they're low, you morons!" I screeched between heaving sobs, "Can't you see I'm crying my heart out?!"
All my hopes for one day meeting a half-way decent guy and having a baby the traditional way - i.e. not on my bleedin' own - went out of the window. I'm still menstruating on borrowed time but there's not much hope. As there's not much hope of finding a man either I suppose it shouldn't bother me... In all honesty I'm no fan of babies, it's just the disappointment of knowing that experience is not something I'm ever going to have.
Whilst I was in hospital my front door "broke" - the locking mechanism gave up and the whole thing had to be replaced. The day I got home the new boiler sprang a leak. A week or so later, my tumble drier spontaneously combusted and my mother and I carried it, still smoking, up the garden when I still wasn't supposed to be lifting anything heavier than a kettle

Nope. I really don't like this time of year.

In memory of Jake Reece ~ I think about you in the Summertime...